Since many years members of the Association of European Coeliac Societies (AOECS) recognise 16th May as International Coeliac Day.

In many regions of the World coeliac organisations unite their forces around this day to share stories, activities and tools about how is like living with coeliac disease and help raise awareness on what it takes to live gluten-free.

This year, in Australia, Canada, New Zeeland and USA, many organizations join forces in the #shineAlightOnCoeliac campaign. You will be delighted to learn some illuminating facts and stories at their website: #shineAlightOnCeliac.

In Europe, the Association of European Coeliac Societies (AOECS) wants to pay tribute to all women who:

• are coeliac themselves – girls and women are twice as many as men diagnosed at any age
• have a coeliac relative – children or adult family members – as housewives are responsible for caring for the family, following the strict and lifelong gluten-free diet, provide care and support
• even actively participate as passionate members and volunteers of the coeliac patients support groups and associations locally, national or global level
• as a committed healthcare professional, as a dietitian who informs, educates, follows from the first moments, just after the proper diagnosis, and supports celiac families in learning and maintain modern, nutritious, and sustainable kitchens at home.

AOECS also will use the Social Media Channels to share also facts about coeliac symptoms in girls and women.

Naturally, we never forget: coeliac disease is a lifelong chronic condition of all ages, and in Europe the ratio of diagnosed cases does not exceed 1 : 7-8.

Last but not least, we invite everyone for our open webinar on the 19th May, about “Women and coeliac: unveiling the role of women”.

About the disease:

Coeliac disease affects 1-2 in 100 genetically predisposed individuals who develop a small intestinal inflammation (enteropathy) on exposure to dietary gluten. (Gluten is the storage protein of wheat, rye and barley and widely used by the food industry). Symptoms can include bloating, abdominal pain, nausea, constipation, diarrhoea, bloating, tiredness, anaemia, headaches, mouth ulcers, recurrent miscarriages, weight loss (but not in all cases), skin problems, depression, joint or bone pain and nerve problems. The disease can be diagnosed at any age, even without symptoms, as a result of family screening.

The only treatment of coeliac disease is the life-long and strict avoidance of ingestion of gluten.

About AOECS:

Association of European Coeliac Societies (AOECS) was founded in 1988. Is an independent, non-profit organization, currently 26 enrolled member societies across Europe, representing people who are effected by coeliac disease or dermatitis herpetiformis and seeks to collaborate with international coeliac organizations worldwide.

May is here! A full month to raise awareness regarding Celiac Disease and to celebrate ourselves!

During the following month, not only will we be posting frequently, but also all the associations/federations that are part of CYE and AOECS. CYE wants to invite you all to take part on the quiz that we are putting with enthusiasm together for all of you on Instagram every Sunday during May 🙂

Let’s advocate for the coeliacs together!!

@cyecoeliacyouth

Hello gorgeous people all over the world.

Over a year has passed since the beginning of this pandemic.

During this time we had no choice but to adapt to the situation and to change our habits and behaviour. That is definitely not easy for anyone.
Since last year, We kept hoping: hoping that the whole situation would go better, hoping that the number of the infected would decrease, hoping for an earlier arrival of a Covid-19 vaccine.

The pandemic surely took some serious steps in a positive way, but, sadly, this whole situation is incompatible with some kind of things, such as young coeliacs coming from all over Europe and having some fun all together.

With immense sadness, but full of hope, We announce that for the second time the CYE Italian Summer Camp 2021 is officially cancelled.

Hoping to be able to hug and see each other again as soon as possible, We deeply thank you for your patience, hoping that you can understand.

Stay safe people, one day we will meet all together again. And it will be majestic.

HELLO AND SEE YOU SOON! STAY STRONG!

#cye # summercamp2021 #summercamp #aic #aicfvg

Hello there young people

Hope that you’re doing great and that the planning of your Christmas holidays are looking promising .As you might have seen, we haven’t been posting a lot in the past few weeks. Considering the whole situation in which our world is currently in, unfortunately nothing is certain. Most of us don’t even know if we will be able to spend Christmas with our dear relatives.At the moment it’s hard for us to be sure whether the Summer Camp will take place or not.

So despite our willing to communicate to you all the activities that we’re planning and our deep desire to have all of you in Italy, We just didn’t want to disappoint your expectation once again. We didn’t want to pretend it’s all going as planned and it will surely happen.We just wanted to be sure you’re ok and you still have that willing to have fun to bring to the Summer Camp, like we always do every year.

Take care guys, stay safe. Hoping to see all of you this summer,

We wish you the best Christmas Holidays! CIAO!

In the past 18 of november, the CYE board was present on the European Patients Forum (EPF) Youth Group Work and Youth Strategy (WAYS) launch webinar. 

The EPF Youth Group is made up of young patient representatives between 15-29 years old. They all have different chronic conditions and they come from all over the EU.

The aim of the EPF Youth Group is to become the reference group of the young patient community and its role is to communicate the needs and expectations of young patients to EPF and its members. 

This way, the WAYS webinar focused on how challenging it can be for finding employment for any young person, even more so if they live with a chronic condition. This way, an online survey was launched and some of the results were: 44% of those interviewed felt that finding a job was ‘Difficult’ or ‘Very Difficult’ and 81% of respondents were not aware of employment support registries available in their country of residence.